His hand in mine

He held my hand.
The finale of my trio of babies.

We walked.
Not too fast, not too slow. 

I mostly listened.
To his stories about life at school. 

I stayed curious.
Asking questions to understand his heart. 

I relished in the gift of time.
Being present with his words as we walked. 

Nothing else to do.
Nothing else on my mind. 

Just my baby.
His hand in mine. 

He let go, more than once.
Worried someone would see him.

But he always came back.
Hand in my hand, smiling broadly.
The classic twinkle in his eyes.
My son, eight years later.

Time has never moved so slowly,
Yet passed so fast,
As it did tonight.

Just my baby.
His hand in mine.

To the ones who don't understand

I'm sorry.
I know I can be confusing.
I am confused, to some extent.

But my instinct is strong, right now.
Confused at times, but strong in my resolve.

I will do everything I can to protect my kids, while I have the choice to do so.

Have you ever wondered if your child might die?
Seriously, without an ounce of dramatic flair.
Have you ever really looked your child's mortality in the eyes?

Have you worried every single day, each time you prepared a meal, bought groceries or watched your child eat that today might be the day they stop breathing? That the food you lovingly bought and prepared for them might actually kill them?

I don't mean to sound crass or lean into stories of trauma and terror for attention.

All I mean to say is this:

I thought cancer might kill my daughter.

I live with daily chronic stress related to raising a child with anaphylaxis. I wash my hands more often than those most fearful of coronavirus because my actions directly impact whether my son survives, every single day.

I had no control over their diagnoses.
No choice to make.
All I could do is learn to live in the uncomfortable space and breathe through the dark moments.

Since the pandemic began, I've found the grey area exhausting to navigate.

What is safe to do?
- grey -
Who is safe to be around?
- grey -
What level of risk is comfortable?
- grey -
What happens when I change my mind?

It continues to bring me to tears.
It's hard and wild and unrelenting.

But inside this pandemic, I've found I have some choice.

I can choose to reduce my family's risk of becoming sick.
I can choose to make decisions about what feels safe.
I can choose to speak up when something doesn't feel right.

So, I might sound confusing to some.
Overreacting to others.
Difficult.

But the truth is, I am still healing.
Trauma is engrained in my bones.
Chronic stress in my blood.

And while I am not living in fear as a result of this pandemic,
(I trust in God and feel protected by my family of angels)
I am making the choice to take precautions for the health of my children.

And those precautions are subject to change.
In fact, they change pretty regularly.
Even when I don't want them to.

This pandemic is confusing, and new information means the grey area continues to be just that.
So. Damn. Grey.

But because I have considered more than once that my child could die... injected an epinephrine needle into my son's tiny leg... stood in a surgical waiting room wondering when the oncologist would provide an update on her prognosis... begged God to take it all away from them and give it to me...

I am always considering what choice is best to protect my children.

I know you don't understand.
But bear with me.
Be patient with my confusion.
Notice, but please do not judge.

Consider that you'll never fully understand how it effects my healing heart for me to have a choice to protect them, this time around.

Protecting their roots

This year is really stretching my parenting muscles, as my oldest is now eleven. I find it hard to navigate his lived experience with him, as childhood has amplified, as far as I can see.

Children are growing up faster.
Exposed to infinite amounts of knowledge much earlier than I ever was.
Technology is glued to their every day.

Kids are still making mistakes,
but now it's captured on cell phones.
Posted to social media.
Repeated when they don't learn from their mistakes.

Friendships aren't enough to satisfy.
Children yearn for followers.
Online gaming communities.
The social thumbs up.

It's an incredibly fast-paced world for little brains.
More often than not, it's too fast for mine.

And I think to myself,
if cell phone and social media streams can suck the life out of me some days,
bait me with nonsense and trolls,
leave me feeling more worried and angry than before I scrolled,
why on earth would I allow my son to navigate it, now?

Why would I permit 24/7 access to a world of overwhelm?
I've come to feel very strongly otherwise.
It's not yet time to plug in.

He needs family dinners.
Snuggles on the couch.
Time to read, play lego and shoot hoops in the driveway.
Teamwork and leadership at hockey.
Freedom to navigate the library.
Hours spent in nature.

He does not yet need to plug in to a hurting world.

Sample it, sure...

Let's discuss politics.
Trauma.
Death.
Cancer.

Let's explore ethics.
Injustice.
Addiction.
Homelessness.
Sexuality.

Let's learn about mindfulness.
Love.
Peace.
Religion.
Friendship.
Family.

But I've come to believe that my children deserve time to grow.
Engage their own experiences.
Observe life.
Explore.
Before plugging in.

I believe that my children have the right to explore their personal boundaries.
Find their own passions.
Think critically.
Learn.
Before plugging in.

I believe that my children need time to relax without technology.
Play without structure.
Worry less.
Love.
Before plugging in.

I want my son, and all my children, to feel grounded in themselves.
Content to be exactly who they are.
Able to observe the motives of others.
Free to make peaceful choices.
Connected to nature.
Full of faith.

I want them to grow roots in life's natural experience. 

So for now, they won't be plugging in.
There will be no cell phones.
No social media.
Only moderated gaming, tablet use and internet search.

They'll sample it all, absolutely.
We'll discuss, explore and learn.
But they will not plug in.
Not yet.

For now, I'm protecting their roots.

d day. part two.

(2 of 3)

diagnosis day. part two.

Immediately following the news of Brooklyn's cancer diagnosis, Jay and I agreed we should call a few people to update them. I offered to call our three sets of parents, and ask them to share with the rest of our family.

I remember the exact spot I sat in, a crumbled heap on the floor.
I was outside 3B2, where a mechanical penny machine sits in glass.
I sat down on the ledge beside it, unable to walk any further.

It was cold.
Hard.
Exposed.

I didn't know where else to go. I think, in a way, I needed to be in a public place, and as it turns out God blessed me with a McMaster mom angel who stopped not once, but twice to check in on me.

"I can see you are having a hard day. Please let me give you a hug." she said. I was so shocked by her kindness, yet so grateful for her in that moment.

I called my mother-in-laws. One at work. One at home.
I also called my parents, my dad picked up the phone.

Never in my life have a stuttered like that.
Never.

I couldn't string a sentence together.
I remember saying 'Brooklyn... has... cancer.... surgery... biopsy....'
But I don't remember being able to say much else besides a quiet request that they each contact our siblings and extended family to update them of this news.

For the first time as Brooklyn's mother, I was useless.
There wasn't a thing I could do to stop the train.

A train which derailed, earlier that morning, and was speeding.
Speeding down a hill so steep, I was breathless.

---

Because Brooklyn was on the 'add list' as a registered patient in surgical, hospital OR time was very fluid and changed in a heartbeat. We knew she would have surgery later that afternoon, a laparoscopic biopsy, to test the tumour inside her abdomen.

What we weren't prepared for was hearing the head of oncology tell us they'd like to insert a port-a-cath into our daughter's chest. This tool was vital for chemotherapy, a medical procedure they believed essential given the potential for an advanced stage cancer.

I remember sitting in the social room in 3B2, surrounded by families playing games, laughing and participating in craft time.

I remember our table was not laughing.
Not having fun.
Not even close.

The rest of that afternoon was like a hyperspeed episode of a hospital drama.

From the meeting, to a child life specialist racing down the hall to tell us she was being taken for surgery.
To the OR holding area, only to be bumped and forced to wait almost two more hours for surgery.
Into the OR, where my daughter begged to go home, then fought every doctor and nurse who attempted to touch her.

I left my daughter in an OR.
Cancer in her stomach.
Her future resting on the results of a biospy only moments away.

I left her.
I couldn't help her.
I couldn't fix it.

I remember falling into Jay's arms, a heaping mess of exhaustion and anxiety.
I remember him forcing me upstairs to Brooklyn's room, to my waiting mother and aunt who, despite my best attempt to tell them to leave, stayed to care for us. Thank God.

I was completely numb.
I was shaking.
Thousands of pounds on my shoulders.
My head was exploding.

They made me a sandwich.
I sat in stunned silence.

d day. part two.
January 20th, 2016.

#CCAM #WarriorPrincess #TeamBrookie #MorePreciousThanGold

d day. part one.

(1 of 3)

In honour of Childhood Cancer Awareness Month, I've decided to write and share a few deeply personal stories about our childhood cancer journey. I hope that by posting them, they may inspire other cancer families to share as well, as a way to honour their grief, spread awareness and find healing in their own words.

Today I begin sharing the story of d day.

diagnosis day. part one

Day three of our Warrior Princess's first hospital stay.

The evening prior, Brooklyn had completed a CT scan under sedation. Doctors had been very deliberate in using the term mass to describe the fist-sized growth in her abdomen.

This morning it was different.

Jay and I knew that surgical rounds were early in the morning, 7am-ish, so he raced from our home in Niagara very early to make it up to McMaster in Hamilton, on time.

Brooklyn was tired and groggy, I was beyond exhausted.
The first two days had been painfully long, wrought with fear and anxiety.

This morning, the surgical fellow assigned to Brooklyn's case, a man not much older than myself and who I instantly came to trust, leaned into B's room stone-faced and serious.

"We need to talk about Brooklyn's tumour."

I could feel the heat rising in my chest.

We took a slow walk down the hall, into a room which we later discovered was the staff lunchroom.

We sat down.
Jay and I on one side.
Dr. Flageole and Dr. Amar on the other.

My hands shook.
Jay was white as a ghost.

In the minutes that followed, the surgical team explained the size of her tumour, the location and the concern regarding her aortic vessel. Over and over again they spoke, drawing pictures and asking for us to confirm we understood. Finally, they asked if we had any questions.

In a whisper, with my eyes full of tears, I asked,
"Is this cancer? Does Brooklyn have cancer?"

His answer broke me in a way I was never prepared for and still have not recovered from just yet.

"We need to do a biopsy to find out, but yes, we believe this is cancer."

A
MILLION
P
I
E
C
E
S

My heart broke into a million pieces.
I lost my breath.
I gripped Jay's hand, afraid to look at him.

scrappy imagery from the doctors

The doctors excused themselves, offering us a few minutes alone. The sound of the door sliding closed was deafening, I couldn't take my eyes off the paper image drawn of this beast, called cancer, inside my baby girl's stomach.

We fell apart.
Heavy tears.
Shattered hearts.
Parenting soulmates.

Broken.

There were no words.
There was only numbness.
Burning in my soul.
Ringing in my ears.
Cold skin and hands.

Grief.
Painful, breath-taking, instant.

After five minutes, we dried our eyes, stood up and did the only thing we could.
We walked back down the hall to our beautiful daughter's room, and we smiled at her.

d day. part one.
January 20th, 2016.

#CCAM #WarriorPrincess #TeamBrookie #MorePreciousThanGold

The unwanted guest

What a July it's been, for our family.

Brooklyn's latest test results came in a little over a week ago. Her MRI was NED (no evidence of disease) and while her urine markers were up, the oncologist assured us it's nothing at all to worry about as random urine samples for absolutely anyone can change from day to day.

The spot on her liver has not changed in any way, therefore the doctors will continue to monitor it with ultrasounds every three months after her MRI scan and bloodwork.

She has officially moved to the 'aftercare' clinic in 3F at McMaster.
The secretary congratulated us when she handed back our appointment card.

This month we celebrated and thanked our friends and family with a big party at our place... food, cold drinks, ice cream, fun and lots of laughter. We cried a little, hugged a lot and ended the day feeling overwhelmed with gratitude for our village.

A front AND backyard full of our family and friends. We are so blessed.

Brooklyn is, by all definitions, back to normal.

She'll be participating in the Heater's Heroes event next month in Niagara Falls.
She's happily attending camp twice a week.
Swimming in the pool with her brothers.
Playing with friends.

She is a survivor.
She is a hero.
She is my daughter.

Despite all this goodness and normalcy, lingering doubt remains.
My mama brain never shuts off.

She expressed feeling very dizzy two days in a row this week and the roller coaster of worry began...

What if?
How could?
Why?

Let me tell you, the thing about cancer is that once it's arrived, you can never really pack it up and send it out the door. There will always be an unwanted guest in the heart of a parent whose child experiences cancer.

I pray for, and worry about my kiddos every. single. day.
But this unwanted guest called cancer, it has the strength to overwhelm gratitude.

#TeamBrookie #WarriorPrincess

This morning was a tough one

Brooklyn and I went up to Mac for her three month check up, sprinkle donut in hand, singing loudly to the 90s mix on the radio.

 

We arrived on time, and B was happy to be there.

She ran to the far right desk in the entrance of the 3F clinic, proud to know her way around.

She grabbed her paperwork, and in we went.

 

The 3F clinic was quiet. We may have been the first family to arrive.

She was happy to play toys and wait for the doctor until we found out she required a finger poke, as oncology teams call it, down in the lab.

We hadn't been there before.

A finger poke was new.

She was used to IV lines and major blood draws.

Because of this, she immediately shut down the moment I told her we needed to take a walk.

 

The child life specialist and I bribed her with ipad time and treasure chest rewards.

She was leery, but she went.

 

Upon entering the lab, her switch flipped.

 

Happy, agreeable Brooklyn was gone.

Angry, anxious Brooklyn had taken over.

 

The nurse, child life and I couldn't convince B to walk into the finger poke room.

She literally dug in her heels, crossed her arms over her chest and started shouting NO WAY.

 

My heart sank.

My body started to shake.

Tears formed in my eyes.

 

A beautiful, teenaged cancer kicker (who was waiting for her own finger poke) noticed.

With her thin frame, cute hat and positive smile, she came over to Brooklyn.

 

She was in for her second finger poke of the week, she said.

Do you want to come and see how we do it, she said.

It's really ok, she said.

You even get to pick the bandaid, she said.

 

Brooklyn's shoulders dropped a little.

Leery once again, she held my arm tightly and entered the finger poke room.

 

This gorgeous cancer kicker, with her wide smile, talked Brooklyn through the process. Why they warm her finger, how quick the poke was, how she looks for a cool bandaid while the nurse works in order to stay distracted.

 

B watched.

B listened.

 

In the end, it didn't matter. Brooklyn has post-traumatic stress associated with needles and her fight or flight instinct did kick in. She completely lost herself, kicking and screaming and hitting and crying so hard she was sweating.

 

It was overwhelmingly sad.
My heart broke into a million more pieces.

Cancer fucking sucks.

 

But, this girl, this teenager who's fighting cancer the way a boxer would his opponent, she reminded me of something.

 

Even when our bodies feel weak.

Even when our spirit is on empty.

Even when every single OUNCE of our mind tells us life isn't fair.

 

We have to fight back.

We have to stay focused.

We have to lead with love.

 

This girl, she led with instant and genuine love for my Warrior Princess, and for that I am so grateful.

 

This morning was a tough one.

I will take some time to cry.

Grieve.

Hurt.

 

And then I will pick myself back up and love, the way this beautiful girl demonstrated today.

I hope you'll do the same <3

 

#TeamBrookie #WarriorPrincess

The first scare

Yesterday I brought Brooklyn (and her brother) to visit their pediatrician.

Ethan's breathing has been problematic.
Brooklyn was having acute pain in her lower left abdomen, which made my mama instincts scream.

The doctor recommended we go to the hospital for xrays and an ultrasound.
We slowly walked out to the van, I buckled the kids in and shut the door.

My heart began to flutter.
I wanted to vomit.

Thank goodness for retired parents, as they (without hesitation) agreed to take E immediately so we could head to the hospital.

Now what?
What do I need to pack?
Who do I need to call?
How long will we be there?

We left the office and managed to get to my parents house within the half hour, with a stop at home and at the pharmacy in between the two. As I unbuckled E, the tears began streaming down his face.

He begged to go home.
He clutched my neck.
His entire body wrenched with heartache.

Guilt overcame me.
I could not comfort my son in his time of need.
I had to leave him behind, knowing he was struggling with great fear.

Will I tuck him in tonight?
Will I be home in my own bed tonight?

Brooklyn and I spent about six hours at our local hospital. I re-told Brooklyn's entire story from start to finish three separate times, each time feeling more and more anxiety. Brooklyn was so angry to be there, but thanks to some colouring supplies gifted to us during her illness she was distracted while I recounted hospital stays, pathology reports and the like.

I kept telling her it was going to be ok.
She was going to be ok.

Truth is, I had no freaking clue if I was right.
And that scared me to my core.

What if there was a pocket of infection left?
What if we needed to travel back to McMaster that night?

Then the list making...

I need gas, groceries for the boys, an overnight bag....

The spinning, circle of anxiety began.
Post traumatic stress and painful memories flooded my heart and mind.

-------

The good news is this:

Brooklyn has a couple of abdominal wall hematomas.
She is also thoroughly constipated.
Both are manageable, non-life threatening situations.

The bad news is this:

I can't stop crying.
I am so so sad.
My heart hurts full throttle again.

I cannot figure out a way to function today, other than to sing the song Brookie and I learned in family yoga class. Sung more than 100 times by now, this song is an invisible tie that will forever tether mother and daughter together.

Inhale (breath in).
Exhale (breath out).
I say thank you every day.

Inhale (breath in).
Exhale (breath out).
Namaste.

Sometimes we just need to honour our tears. <3

It's never really over

The thing about trauma is that it's never really over, per se.

Thoughts.
Feelings.
Painful memories.

They linger.
They take up space in our busy brains.
They can easily take over one's ability to feel happy, whole and in control.

The last couple of days I've been marvelling at how all roads in our family life led to the last 6 weeks. Gave us a 'tool kit' so to speak, for dealing with our family trauma.

I spent the last year engaging in meditation and mindfulness practices, resulting in the ability to see light during the darkest of our last six weeks. Friends, both old and new, who allowed me to entrench myself in their personal and family cancer experiences the last number of years, took it upon themselves to prop me up every single day of this journey. The practical way Jay and I rebooted our finances last fall, so that me being without work right now is a setback, not a sinking ship. The family yoga classes that Brooklyn and I started prior to her diagnosis  attuned her to the power of her breath, and taught her a simple song that calmed her worst fears and silenced her tears during our 15 odd days of inpatient treatments.

All of these roads have led to today, and just weeks after I posted about my self-declared 2016 Year of Celebration, we found ourselves stuttering and gasping for breath, trying to verbalize the sentence, 'Brooklyn has cancer' to our closest relatives. I will never forget making those phone calls, in the third floor hallway of McMaster Children's Hospital, a pile of mush on the floor. Trying, so so hard, to breathe.

I could be angry.
After all, it feels entirely unfair that a five year old should fight cancer.

I could be depressed.
It was painful to see my daughter, my own flesh and blood, in intense pain.

I could feel anxious.
After all, there are more results pending, and there will be follow up tests for many, many more years.

I could loathe God.
Many people do, following a trauma.

The thing is, I don't.
I have moments of anger, sadness and anxiety.

But I mostly feel gratitude.
Intense gratitude.

For the 'doers' who carried my family and I through this journey.
For my husband, whose love for our family carried us when I fell apart.
For my dearest, most incredible friends who lived inside my head throughout the last six weeks, offering daily support, checks ins and countless opportunities to say they loved me.
For my body, which carried my soul.

You see, we will all experience trauma at some point.

We will lose people we love.
Parents. Siblings. Babies. Neighbours.
Some of us will fight cancer, disease and mental illness.
Be unemployed, battle addiction and see our children struggle to succeed.

We will hurt, deep down in our souls.
We will feel like we cannot go on.
Like the world is better off without our pain.

But wait.
We can choose another path.

Gratitude is a conscious choice to look at every single interaction in our day as a gift, a silver lining through the thick grey clouds of trauma.

Let's be honest here, trauma brings out the best in the people we love. Coincidentally, trauma also showcases the tragic flaws in others, some of which I can personally say have been disappointing to witness.

But I can still choose gratitude.

I can choose to feel 'lucky' that Brooklyn's type and stage of cancer was the best possible outcome in the medical books. Even if being truly 'lucky' is having a child that never experiences cancer at all.

I can choose to be grateful that I am home with my children, snuggling and caring for them, despite the fact that this means my income is nil for the foreseeable future.

I can choose happiness.
Peace in my soul.
Love in my heart.
Faith in God.

A very wise friend said to me, once you battle cancer it's never really over, it just becomes the new normal. You live for today, and you make a choice not to worry about tomorrow.

And so it may never really be over, per se.
But I firmly believe the aftermath of trauma is manageable with a heart full of gratitude.

#TeamBrookie #WarriorPrincess

Perspective

We've been home for 48 hours now.
Not quite back to 'normal', but definitely the closest we've been in five weeks.

Five weeks.
January 18th to February 18th.

That astonishes me.
Five weeks felt like five months.

Every single day the first thing I thought about was cancer when I woke.
Cancer when I closed my eyes at bedtime.

Dreams unlike any I'd ever experienced before now, dreams I pray I never experience again.

When my friends and family posted photos on social media of their fun events and happenings, I wanted to scream, "My daughter has cancer! How can you be so inconsiderate!"

When I checked out at the grocery store and the cashier asked me how I was, I wanted to spill my sadness all over the register, talk about my daughter's pending cancer tests and treatment.

Every moment, of every day.
My daughter has cancer.
It was written in my mind, on my heart and sat on my lips.

I knew I was struggling.
I knew no one else did anything wrong or spiteful or malicious.

But my heart was hurting so badly that everything I saw, read or experienced just hurt me more.
Bruised deeper.
I couldn't control my feelings, they raged beyond my heart.

Yet, I made it.
My boys made it.
Brooklyn my Warrior Princess made it.

And in the darkest moments, I gained perspective.

When my anger boiled over Brooklyn's incision infection, the  night nurse told me a story about a family admitted for nearly three months due to raging infection in their newborn.
Perspective.

When I wanted to scream on day seven, that we were still admitted, Brooklyn's surgeon shared that she had been walking the wards trying to find a room for a little wee boy who's surgery was about to be cancelled for the second time due to lack of beds.
Perspective.

When, on day ten, Jay and I sat in the play room watching Brooklyn.
When I wanted to get into the ring with all of the negative thoughts still lingering in my brain.
When I wanted to lose it on the doctors for suggesting we 'wait and see' one more day.
When I could feel the literal boiling of my blood.

A husband and wife team carried their daughter into the playroom.
Sick from treatment, without any hair, feeding tube in her little nose.
She could do nothing but sit.
Stare.

Opposite my daughter, moving about in the little play kitchen, attempting to bend over and find new plastic food to feed her baby doll.
So much perspective.

Now, we are home.

My body is no longer running on adrenaline.
It is intensely achy, throbbing at times and struggling to stay awake.
My brain is foggy.
My legs are weak.
My eyes hurt.

I quit my teaching term.
I pulled our wee man from day care.

Life, as I know it, is only a fraction of 'normal'.

But I managed. I breathed through it. My body held my spirit together.

For the first time in years, I am proud of my body.
My physical self carried my spiritual self in a way I didn't realize was possible.

Perspective.

The moment the nightmare ended

Shortly before Brooklyn's surgery, the doctors gave her some medication to relax. She is so traumatized from the last month, we requested this to avoid another major OR meltdown.

She quickly relaxed, played her Shopkins game and waited for her pending surgery. Jay and I were a mess, every conversation with doctors over the last month skipping through our heads, every outcome flashing before our eyes, knowing that once again we were putting our little girl's life in the hands of others.

She couldn't form a cohesive sentence in the minutes before we moved into the OR, but let me tell you, she most certainly could once she rolled into surgery. She told every doctor off, saying they were meanies and she absolutely refused to lay down. The surgical team held her down while I rubbed her head and sang 'our song' to her, mask over her little face.

It was a moment that took my breath away.
I came out and fell apart in Jay's arms.

There was nothing left to do but wait.
And it hurt the greatest depths of my heart.

In the hours that followed, we were visited by nurses, child life specialists and other McMaster team members we met over the last few weeks. It really hit me then, that this wasn't just a terrible dream. We weren't making this a bigger deal than it was.

It also hit me that we had the entire McMaster professional team routing for us.
For her. For a positive outcome.

Our social media pages were oozing with prayer offerings, energy dedications and words of love and faith.

It was overwhelming.
I was totally numb.

And then, it happened.

Brooklyn's surgeon came out to see us.
Much earlier than anticipated, Jay and I flew out of our chairs.

She looked at us so calmly and said,
"I removed it. I was able to remove all of it. As far as I can see, 100%"

I was stunned.
I felt my knees get weak.

I told her she was incredible, to which she replied it wasn't that big of a deal. She knew the tumour was friendly and she knew she could do it.

To her, it was science.
Training. Skill.

To us, it was miraculous.
Prayers answered. A new beginning.

Our daughter, our little Warrior Princess, was going to be ok.

In the next hour, we were visited by her other surgeons, who were proud to say they also agreed that 100% of the tumour was removed. I hugged them so hard, I probably scared them.

Lastly, our oncologist popped in. Her words went like this,

"You better consider going on that vacation after all."

You can't even imagine the tears that followed.

#TeamBrookie #WarriorPrincess

_

Brooklyn is still admitted at McMaster, and she's moving through the ups and downs of post-operative recovery. While this week has been exhausting and difficult, we're confident she will make a full recovery in the weeks to come. Final pathology will be available in another ten days or so, at which time we hope to hear Brooklyn will only need to be monitored regularly and not undergo any further treatment.

Thank you for your continued prayers and love. xo

The night before

The last two days have been awful.
Every single one of us, kids and adults, feels uncomfortable, sad, worried and downright angry.

There have been yelling matches.
Hockey sticks to the forehead.
(for the record, this was Ethan to Brooklyn, we are good parents I swear)
Walls slammed with hands.

Tears.

So
Many
Tears.

And lots and lots of hugs and cuddles.

Its hard to imagine how Brooklyn is feeling, but given her two enormous angry outbursts (one at home and one today during pre-op) my guess is she's deeply disturbed and scared. She's trying so desperately to be in control of absolutely anything right now, that simple things like 'turn off the tv for dinner' have become heart-wrenching meltdowns.

My head is pounding.
My back hurts so bad I visited the chiropractor on 15 minutes notice today.
My cheeks are continuously flushed.

But now, our bags are packed.
Toys and colouring books from family and friends overflow their bag.
Scentsy buddies are filled with hugs and love at home, in mommy's absence.

New ipad apps.
Snacks, drinks and fruit.
Lots of advil.

Yaya the dolly.
Annie the angel bear.
Blankets.

Now we need your prayers.

For the surgical team charged with removing this ugly tumour.
For our warrior princess, that she digs deep inside her beautiful soul and find a way to smile.
For our boys, left behind to live out the week under the guidance of amazing family.
For Jay and I, that we find peace during the surgery, remain calm should complications occur and meet the day with radical acceptance and gratitude.

I do not anticipate posting any updates here until we are home from the hospital. We appreciate all the kind comments and love left on this blog, and promise to update you as soon as we are able.

#TeamBrookie #WarriorPrincess

The lump, tests, angels and God: talking to our little ones

A great many of our friends and family have expressed worry over what to say to their little ones, as well as to Brooklyn and her siblings. I thought I would share what we've said to date, in case it helps anyone:

Brooklyn has a lump in her belly. The lump shouldn't be there, and even though we cannot see it, it is inside of her. The doctors are doing lots of tests and taking lots of pictures to try and figure out what kind of lump it is - the name of it - so that they can come up with a plan to remove it.

It may involve more medicine, it may involve more surgery, or a combination of those things. We don't know yet. We may even have to sleep at the hospital for awhile, as we did last week.

It's ok to be scared. It's ok to be angry. It's ok to want to scream and yell and cry and be quiet and not talk at all. All of those feeling are ok, but we've told all three of the kids they are absolutely NOT alone, that we all feel the same way and are all looking forward to Brookie being well again.

On Thursday, Nolan asked us how it got there.

Good question.
That one caught Jay and I both off guard, and so we answered like this:

Inside of our body, there are cells. Sometimes those cells can become confused and grow into things they are not supposed to grow into. Brooklyn's lump is a group of cells that grew in her belly, but they should not be there. We need to remove the lump in order to make Brooklyn better.

It's not Brooklyn's fault, or anyone's fault, that these cells grew in her belly. All we can do now is wait for the doctors to come up with a plan to make her all better.

As you can see, we haven't mentioned the big 'C' word yet, partially because it is not an official diagnosis, and partially because hypothetical statements will only cause anxiety and worry in our kids. We know this all too well, we've been living with it for two weeks now.

We will wait until all the facts are known before telling them any more.

A few well-meaning people have recently said to Brooklyn, "We are happy that you are all better." This is an incorrect statement, and we politely ask that you refrain from saying this to her.

She is taking a break from the hospital for a few days, until the doctors come up with a plan to help her. She is resting, healing and playing with her friends at school because those things feel good and are good for her to do. It is safe for her to play, and we are happy to see her go to school.

Finally, I've talked to her a lot about God and angels:

Angels can help you, when you are feeling sad or lonely or worried. Its important to ask your angels to help you. You can talk quietly to yourself, write them a letter or just say the words in your head. Mommy has been calling on all our family angels to surround us with love, white light and protection as we live each day.

God is also watching over you. We don't know why you have to go through this, but we know that God has made you a strong and beautiful girl capable of getting through whatever we have to do in order to be well again. We trust in God, even though this is the hardest thing we've ever had to do.

I hope this helps a few of you. Please encourage your kids to play with Brooklyn, love her up and tell her how much they missed seeing her. She's a beautiful five year old whose soul is fueled by spending time with her friends and family.

#TeamBrookie #WarriorPrincess

Coping

Brooklyn has finally completed the last of the required tests.
Her only scheduled appointment next week is a surgical follow up from her biopsy.

Now we wait.
Wait for a diagnosis. A treatment plan. A timeline.

It's the scariest feeling ever, to know something so important rides entirely on others. Highly intelligent and well trained others, but still the lack of control takes my breath away more than once a day.

I feel sad.
Empty.
Anxious.
Shaky.
Weak.
I've really pulled into myself, the way a turtle crowds it's shell during times of danger.

I worry about my boys and the trauma this has caused each of them.

E has endured nightmares. He needs to know where I am going and when I'll be back. He asks lots of questions about where his siblings are, and he was so angry last week when we made it clear he wasn't allow to hug his sister because of her boo-boos. He cried the most gigantic, most heartbreaking tears last weekend as he spontaiously told me how hard it was to go from the babysitter's house to his grandparents' house and back. His entire routine was disrupted, despite our best efforts.

N is sullen, at times unable to decipher what he's feeling. He made a feeling picture with the Child Life Specialists yesterday, of our faces before B got sick and since B has been in the hospital.

Left - before B became sick . Right - after B became sick

This image brought me to tears. He is right and its hard to know he's hurting as much as we are, despite our attempts to be as warm and normal as possible. He is a feeler, a deeply emotional child, and he knows that this is serious.

When my mind wanders, I sometimes think about the worst case scenario.
Chemo. Hair loss. Extended hospital stays.
A daughter with self esteem issues... her first set of incisions really upset her.

And then sometimes I focus on the beautiful party we will have when this is all over with.
The music. The jumpy castle. The cold drinks and big hugs.
Tears of joy.
A chance to thank everyone for their support.

The entire next week is out of our hands, all there is left to do is pray that hope becomes reality.
I find myself too tired to pray these last few days, and so I am grateful for all of your spiritual dedication to my family.
xo

#TeamBrookie #WarriorPrincess

Any other day

It began like any other day.

My focus was on getting my kids dressed, packing lunches and loading them into the van in time to make the first bell. Nolan, age 7, and Brooklyn, age 5, love to play for a few minutes with their friends before classes officially begin.

Drop off. Check.
Coffee run. Check.
Morning visit with my wee man Ethan, age 2, to our local early years centre. Check.

Around 11 o'clock that morning E and I headed home. Thursday is our special day together, one I so cherish. I put his favourite show on TV and headed upstairs to make him some eggs for lunch.

Cue the phone.
I always check my call display before answering, and when I did, my heart dropped.

It was my kids' pediatrician's office calling.

In the three seconds or so that it took to pick up the receiver, my mind raced.

B had just gone the previous day for an ultrasound on her abdomen, specifically looking at her bladder. After recurrent UTIs, random unexplained constipation and complaints of it hurting to sit on the toilet, I asked her doctor to consider more testing.

I couldn't take her to that appointment as I was just beginning to teach my first week of the winter term, thank goodness my amazing parents jumped at the chance to spend time with B. The technician had told my mother it would be about 5 business days before results would be available to our doctor.

But the pediatrician's office was on the phone now, on this very normal, average day.
Asking me to come in regarding the results of the ultrasound.
I hung up the phone and my chest hurt.

Not 15 minutes later, the office was calling again.

This time, our pediatrician was on the other end.
"I've reviewed the results and referred you up to McMaster Children's Hospital. There is a mass in her abdomen which requires further investigation. I have spoken directly to the surgeon, he is aware of your case."

That day, two weeks ago, was just like any other day.

The same arguments.
The same requests for cooperation.
The same snacks in my kids' lunch bags.

Never, in my wildest dreams, would I have guessed our very busy pediatrician would call me at home. That McMaster would call the next day and tell us to come in three days later, promptly at 9am.

To be admitted.
To begin a very, very difficult two weeks.

CT scans.
IV drips.
Blood work.
Urine samples.
Biopsies.
Hearing and eye tests.
Echos.
Bone marrow biopsy.
Bone scan.
MIBG scan.

Days so long, tears flowing uncontrollably and questions nearly impossible to answer:

"Why do they keep touching me? They make me feel worser Mom! Make it stop!"
"How many more tests mommy, I hate tests!"
"Why can't I eat, mommy? They never let me eat here!"
"Mommy I am not sick. I am fine. Take me home?"

Seeing my little angel, my precious baby girl, in pain. Suffering at the hands of the people who were put in place to help her. Feeling entirely helpless, hopeless and trembling at the thought of one more wheelchair ride, one more gurney trip around the hospital.

Watching her little eyes close, body full of drugs, knocking her into a deep sleep over and over again for the sake of something that did not exist a few weeks ago.

Trusting strangers to care for my baby as they would their own, and begging them to do everything in their power to make her well again.

...

The day began like any other day.
Two weeks ago tomorrow.
Yet the following 14 days have been the furthest from that day.

And while these have been the single most difficult two weeks of my life as a mom, wife and woman, I can see with very clear eyes how lucky we are.

Yup.

Its only taken two weeks to complete all the tests necessary for a proper diagnosis.
The hospital is only one hour from our home.
We are surrounded by family, friends and even perfect strangers who continue to fuel us with kind words, meals, gifts and hugs.

Love is plentiful.
Hope is visible.
Faith, while being tested, is a strong and capable companion.

Please pray, for Brooklyn and all children who's lives have been anything but any other day.

#TeamBrookie #WarriorPrincess

Mom friends, unite

Mom friends, I need to talk to you.

Thank you for being honest.

For posting photos of your worst parenting moments.
For crying out for help when you couldn't stand one more minute with your kids.
For laughing hysterically at my mishaps, and letting me do the same at yours.

Thank you for reserving judgement.

When I admit I've just pulled into the McDonalds drive thru with tears in my eyes.
When I couldn't go out for drinks because I didn't have $10 in my wallet to spend.
When I wore the same faded pair of yoga pants for the third day in a row.

Thank you for listening.

About my larger-than-life worries regarding fevers, ear infections and immunizations.
About my feelings of failure, disappointment and utter dismay at being a mom.
About the moments that made me cry deep, dark tears from my soul.

Thank you for being my cheerleader.

For sending virtual hugs that reassured me I was worth it.
For the messages of love when I was sick, run down and crawling out of bed.
For the acts of kindness that filled my heart with gratitude and love for our friendship.

The truth is, we're all in this together.
And its the hardest thing we've ever done.

We need each other more than ever.
And we need to stop comparing ourselves to each other.

The choices you make, may not work for me.
Your beliefs will not match all of mine.
How I choose to parent may not be comfortable for you.

And that's ok.

Let's make the conscious decision to support each other with love, kindness and genuine appreciation for our individual journeys. Can you imagine the example we can set for our children?

Mom friends, unite.

The Year of Celebration

It's New Year's Eve.
How did that happen?

As I reflect on this last 12 months, I am profoundly grateful.

My children are healthy.
My husband and I are madly in love.
My mother is recovering like a champ from surgery.

I've grown closer to many relatives and in-laws.
Strengthened friendships with beautiful and strong women.
Unconditionally loved an animal despite its flaws.

I'm writing more often.
Meditating regularly.
Walking through my house daily with a greater appreciation for its character and nuances.

I worry less.
I choose my words more carefully.
I choose gratitude over anger.

I've begun a deep dive into my newest writing project, My Journey to Worthy.

For all these discoveries I have become a more mentally healthy woman. I feel as though my soul shines more clearly around my body, that those who I surround myself with have been privy to my most authentic self to date.

Yup, I really feel that way.
And its awesome.

I am very much looking forward to 2016, as it will mark some major milestones... 'big' birthdays, anniversaries and life stages which deserve celebration.

The kind of celebration which leaves you smiling ear to ear.
Where you heart bursts out of your chest with joy.
And your eyes fill with tears of excitement and love.

Bring it, 2016.
You are my Year of Celebration.

The Bandaid

Last night I fed the boys supper earlier than usual. Their sister was off enjoying some time with family, so I made an easy meal and set them up to eat on our small counter height table in the kitchen. Somewhere between placing their food on the table and starting the dishes, I realized I had cut my foot.

No big deal. Right?
By the time I looked down, the blood was running off the top of my foot onto the floor.
Opps.

I looked down, surprised, and said out loud that I didn't realize it was bleeding. Nolan, who's always been interested in cuts and blood immediately hopped out of his chair and knelt down over my foot.

"It's bad mom. You need a Band-Aid!"

Off he scurried to the upstairs bathroom to grab one on my behalf. I knew he'd have to climb on the counter to reach the medicine cabinet, but I let him do it anyways. I knew he was capable (and his siblings weren't there to learn his trick).

He came running down the stairs and the most curious event happened.

He ripped off the paper cover.
Peeled the sticky edges.
Then placed the Band-Aid over my cut.
Talk about a role reversal.

I was in total awe. My six year old acted calmly, swiftly and with great compassion.
I leaned over to kiss his forehead, and thanked him for his kindness.

His reply?
"I love you mommy."

And then my heart melted.