All the way there

I've been a bit of a mess this month.

We've dealt with our usual MRI appointments and follow ups (which were all NED, thank God), a lovely bout of lice (yes, you read that correctly) and the back-to-school-crazy-transition that rocks the lives of parents the world over.

It has been grey and rainy outside for a couple of weeks.
A new world leader took power, threatening peace.
People are protesting.
Hearts are angry.
So much negativity.

My instinct has been to retreat.
Into my house.
My family.
My thoughts.

I didn't realize how much I was holding inside until this week, when I finally had a good cry and was honest with my husband.

Truth is, I am struggling.
Not with worry.
Not with anxiety.
I think I am just sad.

The reminder posts on social media of the events that took place this time last year are very overwhelming. Full of emotion and fear, it's almost as if I am re-living it all now, a year later.

As my husband puts it, we went all the way there.
We didn't just think about our child having cancer, we actually heard real words from real people.
We are reminded every three months that it could come back.
We belong to a club of amazing people with the worst possible connection.

We went all the way there.
All the way.

As another cancer mom explained it to me, we aren't fearful of what COULD happen.
We re-live what DID happen.

And so as this month comes to a close I am doing something I haven't done in 10 odd years. I am going to donate blood.

To honour another childhood cancer warrior and his family.
A friend's mom gone 15 years.
All who battle this horrific beast.

I will lean into the sad.
Stand strong and rooted in my fierce desire for peace.
I will go all the way there.
And grow as a result.
<3

This morning was a tough one

Brooklyn and I went up to Mac for her three month check up, sprinkle donut in hand, singing loudly to the 90s mix on the radio.

 

We arrived on time, and B was happy to be there.

She ran to the far right desk in the entrance of the 3F clinic, proud to know her way around.

She grabbed her paperwork, and in we went.

 

The 3F clinic was quiet. We may have been the first family to arrive.

She was happy to play toys and wait for the doctor until we found out she required a finger poke, as oncology teams call it, down in the lab.

We hadn't been there before.

A finger poke was new.

She was used to IV lines and major blood draws.

Because of this, she immediately shut down the moment I told her we needed to take a walk.

 

The child life specialist and I bribed her with ipad time and treasure chest rewards.

She was leery, but she went.

 

Upon entering the lab, her switch flipped.

 

Happy, agreeable Brooklyn was gone.

Angry, anxious Brooklyn had taken over.

 

The nurse, child life and I couldn't convince B to walk into the finger poke room.

She literally dug in her heels, crossed her arms over her chest and started shouting NO WAY.

 

My heart sank.

My body started to shake.

Tears formed in my eyes.

 

A beautiful, teenaged cancer kicker (who was waiting for her own finger poke) noticed.

With her thin frame, cute hat and positive smile, she came over to Brooklyn.

 

She was in for her second finger poke of the week, she said.

Do you want to come and see how we do it, she said.

It's really ok, she said.

You even get to pick the bandaid, she said.

 

Brooklyn's shoulders dropped a little.

Leery once again, she held my arm tightly and entered the finger poke room.

 

This gorgeous cancer kicker, with her wide smile, talked Brooklyn through the process. Why they warm her finger, how quick the poke was, how she looks for a cool bandaid while the nurse works in order to stay distracted.

 

B watched.

B listened.

 

In the end, it didn't matter. Brooklyn has post-traumatic stress associated with needles and her fight or flight instinct did kick in. She completely lost herself, kicking and screaming and hitting and crying so hard she was sweating.

 

It was overwhelmingly sad.
My heart broke into a million more pieces.

Cancer fucking sucks.

 

But, this girl, this teenager who's fighting cancer the way a boxer would his opponent, she reminded me of something.

 

Even when our bodies feel weak.

Even when our spirit is on empty.

Even when every single OUNCE of our mind tells us life isn't fair.

 

We have to fight back.

We have to stay focused.

We have to lead with love.

 

This girl, she led with instant and genuine love for my Warrior Princess, and for that I am so grateful.

 

This morning was a tough one.

I will take some time to cry.

Grieve.

Hurt.

 

And then I will pick myself back up and love, the way this beautiful girl demonstrated today.

I hope you'll do the same <3

 

#TeamBrookie #WarriorPrincess