Scanxiety for the child who lives

Once again we find our bags packed and nerves frayed.
Tomorrow is Brookie's next MRI.

All week long we were quietly preparing ourselves.

Saying extra prayers.
Making plans for the boys after school.
Choosing a movie for her to watch.

We talked about Alex, her cancer.
Why she was lucky. Why she wasn't.
She asked for a detailed account of her first and second hospital stays.
A story that never gets old.
Except it does.

I even caught her reading a hospital book to her dolls.

When I woke up this morning, I felt the dread kick in full throttle.
I didn't want to get up.
I felt sick to my stomach.
(I've been in and out of the bathroom all day)

Brookie and I were eating breakfast, when the first wave of tears fell.

She expressed that she didn't want to go, tomorrow.
Didn't like the goggles she will wear while watching her movie.
Feels like the MRI takes too long, and the bed is too hard.
Hates being at the hospital, and driving there.

She cried.
I did, too.

Then I felt guilty, knowing some parents don't have their child alive for this test.
Two years later, and we pray Brooklyn is still cancer-free.
Guilt for the child who lives.

The afternoon moved along, though I felt heavy and sad.
My eyes stung with tears held away from the surface.
My heart pumped with scanxiety.

Cancer still lives in my head.
And the what if's came on strong.

While I was making dinner, Jay and I embraced for a moment.
Both of our hearts hurting in synchronization.
When our eyes met, we shared the same exact fear.

WHAT IF.
What if it actually came back?
What if Alex reappeared?

More tears.

Every single MRI throws us right back to the day we heard those words,
We think your daughter has cancer.

What if this time we weren't so lucky?
What if me telling her after this MRI she has an entire year break is a lie, because there is a mass, a shadow, a lymph node swollen larger than six months ago?

This is scanxiety.
This is survivorship.
This is the reality of cancer.

And yet the guilt, so palpable and thick, reminds me how damn lucky we are to have her in the first place.

MRI eve

After school today we came home and the kids had some free time to play. Brooklyn was agitated, and eventually had a meltdown 'because she didn't get to type on google classroom.'

I knew it wasn't about typing a few letters.
She hid in the corner for awhile, and eventually the truth came out.

"I don't want to go to my MRI on Friday!" she said, with tears streaming down her face. "Friday is a fun day at school. We go to the library, trade warm fuzzies and have a spelling test."

My heart fell.

I hugged her for a few minutes but was interrupted by our old dog's urgent bark to go outside. By the time I came back in, she had shut herself in her room. I intended to leave her there as she was calm, but she slowly crawled out of her room and looked up at me, ready to talk.

What happened next made me both very proud, and very sad.
Tonight she shared her feelings with a brave heart.

She said to me, "The cancer isn't coming back mama, because God is in charge and he won't let that happen. I prayed to him mama, my nighttime prayer. He's listening."

I explained that I wasn't sure why cancer existed. That I didn't think God chose her to have cancer, but rather that he was a capable companion along the journey.

"I don't want to have the MRI. It's like having the cancer out again."

It took me a few moments to take that in.
My experience with her 'having the cancer out' ranks far worse than any MRI.

 I asked why she felt that way, if it was because it hurt or was scary.

"Its both, mama. It's both."

"Mom, cancer can grow and grow and grow and grow."

I agreed, but explained that I didn't expect her cancer to return, That if it did, the MRIs help us discover it early so it didn't have to make her really sick. I reminded her that I loved her, and that I just wanted her to stay healthy.

"Mom, what is the name of the cancer I have?"

I stopped her there.
"HAD, honey. You HAD cancer. You do not have cancer anymore."

We worked on pronouncing the name of the cancer she HAD.
Neuro-blast-o-ma, she kept practicing, with a smile on her face.

"I need a hug, mama."

And just like that, she crawled into my lap and we sat.
More silence.

When she chose to speak, she said this.
"Mama, can you write a note in my agenda? Ask if I can write my spelling test on Monday?"

And just like that, fear loosened it grip and we went on with our evening.

This, is MRI eve.
This is cancer's aftermath.