Thursday, February 9, 2017

One year and a lifetime ago



Today is Brooklyn's one year cancer-free-iversary.

One year ago, doctors meticulously removed her tumour, diagnosed as stage one neuroblastoma for the mix of benign and malignant cells inside its walls. The cancer had not spread beyond her tumour, a reality I like to call being lucky, as far as unlucky goes.

One year ago we began healing.
All of five of us.

First, Brooklyn's physical body.
Her bravery lines.

Then, mom and dad's physical selves.
Back pain. Acid reflux. Sleep issues.

Now, all five of us are focused on our mental health.
Kicking the nightmares.
Lessening the anger.
Managing the guilt.
Feeling the sadness.

All this and we are the lucky family.
We endured a mere five weeks of treatment.
Quarterly follow ups.
A healthy child.
(This is where my guilt takes hold)

Thankfully Brooklyn is finally speaking about her time in treatment, thanks to an incredible play therapy program offered by Wellspring Niagara, which is led by Liz Christie of Playful Solutions. Just last week she said to Liz that every child with cancer is sad, but that sadness is really just being afraid. She has been able to articulate, through sand tray therapy, that sadness has taken her heart, a crushing reality of childhood cancer and medical trauma.

Her progress is slow but reassuring.
And we are grateful.

Little brother still clings, worries with every doctor's appointment and hugs his sister like a deity.
Big brother still feels jealous of the attention she has received, but we're discovering a level of anguish in his anger which seems to be tied very closely to all that happened last year.

And we were the lucky family.
Our daughter is alive.

NED.

She has grown over 10lbs and 3 inches in the last year.
Her hair, ironically cut as a Wigs for Kids donation two summers ago is growing long and thick.
She expresses her desire to be a dance teacher, play therapist, babysitter and mommy someday.
She reads beyond her grade level and next week will be doing a long first reading of Genesis at her school's monthly mass.

She's a freakin' rockstar.
A Warrior Princess.

So, in honour of this special day, we've decided on morning muffins, pasta day at school and then a meal at the kids' favourite restaurant.

We will laugh, eat and play as a family.
Be together as a family of five.
Tell the guilt of having a healthy child to go away, for a day, so we can celebrate.

Today, our Warrior Princess is one year NED.
And our prayers tonight will be plentiful.

#TeamBrookie #WarriorPrincess


1 comment:

  1. Hi Pam!
    Just came across your blog! Your thoughts are beautifully articulated and resonate strongly. I also enjoy writing. I find it very therapeutic. Even before I launched Ethan's Journey, I had an anonymous blog about healing from childhood trauma. If you are interested, I can give you the link. Keep writing, my friend. Reflecting on life experiences is not only healing, but also a beautiful way to capture memories along the way.
    Blessings and hugs,
    Cindy

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